In August 2010, we pushed for “Rosa’s Law” in the U.S. Senate to replace the term “mental retardation” with “intellectual disability” in some areas of federal government. We know how powerful words can be and we believe it is important that people use “people first” language talking to you or about you. After all, you are a person, not a diagnosis. You can find out more about this and other public policy initiatives here.
But even more important than our public policy work are the resources we can provide. We want you and everyone who is important to you to have all of the tools necessary for you to become a self-advocate. Check out, for example, the Medicaid Reference Desk jointly developed with ArcLink, which presents practical information about the Medicaid program in a self-advocate friendly format.
The Di Pietro Family